Efficiency is the name of the game! Currently at the airport, and I’ll be on my way home shortly. Nothing like a day trip to Houston.
The consult went like this:
Dr. Ravi pops open the door and steps in a few feet. “Okay. We have an official consult. I sent out notes to BMS to get us started on immunotherapy.”
That would have been the entire consult, but I wanted to review the last PET scan with him. I asked him to pull up the images, and I took him to the slices in question.
As we thought, he didn’t review that site as it is small and near larger structures. He also mentioned a unique uptake in my upper left chest that is new (which we already knew about from the phone consult).
Either way, we are starting immunotherapy. Whether these are in fact disease is unclear, but we need these remarked upon findings to move forward with the treatment.
Next up is to get my local oncologist up to speed by giving them the notes and protocol.
All the pieces are in place. Let’s start a battle and beat this relentless demon into oblivion!!!
Thank you for all of your prayers. We love you!
February 8, 2016
Heading to Houston for just a consult with Dr Ravi. We usually do phone consults, but we want to get one “on the record” for what our plans are. Meaning, we need clinical notes and a discussion remarked upon in my medical record to bring my case to his superiors and also to Bristol Meyers Squibb (pharmaceutical company who makes the treatment we want to get on).
The plan is to start immunotherapy with Opdivo (I’m sure many of you have seen the commercial about Opdivo). We may include Yervoy to make it a 1-2 immunotherapy punch to this dumb disease!
The other thing I want to make sure we discuss is the remarked upon lung lesion. We weren’t entirely convinced he was looking at the same spot the rest of the team was. He’s the expert with AS, but I need assurance. Face to face time always gives me that because the physician is all mine during the consult!
We love you all. Thank you for your continued prayers!