The good news is our Cycle for Survival team is nearing 10,000 raised! YAY! To donate, please go to: http://mskcc.convio.net/site/TR?team_id=32244&fr_id=1970&pg=team
The bad news is the MRI of the brain came back worrisome for metastatic disease, not to put too fine a point on it. What was originally thought to be a routine scan of my brain (is there even such a thing as routine anymore??), turned out to be anything but. In any other situation minus this disease, the findings would have been most likely benign – most indicative of a cavernoma. As with the PET scan, there isn’t much we can do right now except wait. It’s awful and agonizing, but such is life at times.
What now? Yes, Dr. Ravi has already been emailed, and thanks to the wonderful electronic world, I do have the capability of giving him the entire study through DropBox, if he is comfortable. Furthermore, I have my own private neurosurgeon reviewing the films with her colleagues via the same DropBox route (isn’t technology amazing?!). Dr. Rapson is also going to speak with Dr. Ravi and one of her neurosurgeons, and get back with me today or tomorrow. Dr. Tap also has a copy on the way. With that said, the people who we trust with my case will have their opinions forthcoming. Just like anything, we go forward full steam ahead.
As always, if you need an explanation or have a question, this changes nothing. Knowledge is power. Please do not hesitate to write me.
For those so inclined, I have attached 8 different images of the area of concern, as well as the radiology report from the scan. I share these to educate and in the hopes of helping somebody else down the line, and to get any professional opinions. As with the PET scan, it’s an inconclusive finding, but my biggest fear, by BIGGEST fear is cerebral involvement and invasion. I pray this is of no concern, but for the time being, I need a break. The phrases “breaking point” and “approaching mental capacity” come to mind.
I will find the silver lining in all of this, but just not today. We need your prayers. I love you all!