Update On Consultations

Good morning and happy Monday everyone!  I hope your weekend was as good as ours.  We needed this weekend after the week we just had to endure.  As most have probably figured out, we did not receive good news from Mayo or Sloan-Kettering.  The reason we go to these clinics is for the specialists.  They were not impressed with the PET scan results.

The mass in the middle of my chest is still present as well as the one in my left lung.  Furthermore, neither mass has decreased in size.  At this point, surgery is not an option unless we can get the mass in the middle to decrease in size dramatically.  It would be pointless to do surgery (a risky one at that) on the other mass if nothing can be done about the mass in the middle.

The only positive is that the tumor seems to be responding metabolically.  In other words, it appears to be less active.  With that said, we are going to continue two more rounds of my current treatment and see if we can get it reduced in activity even more.  My doctor stated it is unlikely they will shrink under the current treatment.  It’s a game you have to play and try to beat the odds.  You have to choose a treatment and pray it’s the correct one.

After these next 2 rounds, we will do another scan to see where things stand.  From there, we will either switch to another form of chemo or undergo radiation.  We need a miracle.  We need these tumors to shrink and not spread.  To say I am scared is an understatement.  These setbacks are eating away at me right now.  I just want to have my life back.  When will this nightmare be over with?  I can’t stop crying.

Round 3 of chemo starts today, Monday, June 25, 2012.  As I write this, I am just waiting for the call that a bed is ready.  I will let you know when and where once I get the phone call.

You all have been wonderful in supporting us.  We need to keep praying and hoping for a miracle.  I need your help in spreading the word about our family’s journey.  The future will most likely be involving clinical trials and experimental treatments which can get expensive.  If you were planning on a fundraiser or benefit, we will fully support it.  Thank you so much for all you have done for us and continue to do.  It is not over, and we will continue to fight this disease.  Make it a great day everyone!  We love you all.

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9 Responses to Update On Consultations

  1. james dean says:

    Good Morning Ryan, thanks for the post this a.m. Appreciate hearing even if it was not 100% positive. The fight is not over by any means my friend. Positiveness and Prayers are the order of the day. On Saturday I attended two “Relays for Life”, and you were thought of all of that day. Will be thinking of you today as you start and go through round #3.

  2. Rachel Peters says:

    Good Morning Ryan and Family,

    Thanks for keeping us updated, I think about you guys ALOT, and I pray for you as I read your posts. Your positive attitude keeps me going at times, so as much as this blog for support is helping you get through this dark time, you bring light and positive energy into my life and I imagine into the lives and hearts of others. God Bless you Ryan, you are strong and have a beautiful family to live for.. you have this beat!

  3. Katie says:

    Ryan – thank you for updating. We were so hoping for much more positive news, but even though that is not what you got – don’t lost sight of the fight! I am assuming that since the tumor is “less active” that means it is not growing – right? And that is HUGE!!! That is a victory. This fight just might take longer than you originally thought – but it is still a fight that can be won. We are all here cheering you on! You guys WILL get through this. Good luck today with the chemo and just keep picturing it blasting away at those tumors.

    xoxo – Katie

  4. Lori Brown says:

    Ryan…I do believe in miracles and know that God has one for your family.
    I will see you soon and pray everyday. May God give you strength today.

  5. Rosemary says:

    My prayers are with you and your family.

  6. Laura says:

    Continuing to pray and think positive thoughts for you and your family. Stay strong!!

  7. Willy says:

    Think about you every day buddy!

  8. Brett and Crista Figgins says:

    I’m spreading your story around all of Baca county! This little corner of Colorado is praying hard for you all!

  9. Sarah Coates says:

    Hi Ryan and Family!
    I have been following your blog and your story since a fellow coworker of my husbands shared it on his facebook. My husband is a pilot at Eagle and we have just celebrated the birth of our second girl this last October. I can’t help but feel more inspired to live a better life after reading about your journey. We have been praying for you and your family and I have faith that you are living each day with purpose and providing more meaning to each day than many people do in their entire life time. Your spirit is contagious. I hope this round of chemo has not been to difficult.

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